Update on Trent....

What a week it has been. I am SO drained so I cannot even imagine what my parents and brother Jeremy are feeling... Thos of you who have been in the hospital and have had to spend time either in the NICU or any other kind of ICU you know exactly what it is like to be on a roller coaster ride: and it is NOT the fun ride. My emotions have been high.

I honestly cannot remember what the days are or when it is that I have been to the hospital. I know I was not able to get up there yesterday and it was frustrating for me. Thursday I took my kids and we went to the hospital and it is just not a fun place for kids that are 6 and 4 years old to hang out. My poor kids have been so emotional with this and really want to see Trent, they don't understand why they cannot see him if they are related.. So, I was back in the room and I just lost it, seeing Trent lay there helpless with really NO response, his resperations high and his oxygen having to be turned up again since they suctioned him out~ It stressed his poor body out. He was SO swollen. They finally gave him some more lasiks but it to such a long time to calm him down. He was shaking and we were all lost for words. Nobody will probably ever understand the love we have for Trent. He is our velcro and we have been STUCK to him for 26 years- to have that stripped away we will not know what to do with ourselves. So, I had to leave because I could not stop crying, my Dad was with my kids and Jeremy's friend David Frestion: I could not talk to my Dad so he just went to the room. David is such a great friend and we appreciate him taking the time to come and see Trent and visit with us. Thanks David. Also, our friend Sandy Clayburn has been such a wonderful support; we have LOVED your visits and phone calls. Sandy has been such a great friend to my Mom and we appreciate it!! My Mom had come out into the waiting room and told me that Trent was now stable and that it was a horrible day for him. Earlier that day they had someone come in and tell them that Trent's kidney was going and that he would need to have dialysis right away~ ok, life sucks about now; what do you say to that. So, the guy came back about 10 minutes later and told them he had the wrong information that he was not the one who needed the dialysis. Ok, that was not fun at all... So, what has been going on? Yesterday Trent did pretty good: Trent had to get blood they are still working on the bowels; They took the Picc line out and started a new line. They gave him a bubbly bed so he will not get bed sores, he has done good to come of of some of the meds. We were hoping the vent was going to come off of him yesterday and that did not happen. I woke up this morning since we were told that it would probably happen today, I got up to the hospital my parents and Jeremy were already there: I thought for sure by the time I got there that the vent would be off, that was not the case; though Trent looked more pink today, he was also a little awake and moving his hands.. it was nice to start being able to see the Trent we knew.. We waited a while but nothing happened with the vent, I took my Mom home so she could get some rest. Well the vent might come off tomorrow, time will tell! Please keep praying and again thanks for everything..

E-mail comments:

From my Aunt Sonja:

How is Trent doing today? I have been thinking a lot about him and your family and some of the events that have happened in his life. It makes one feel so helpless sometimes to see someone struggling and not be able to do much for them. Please let me know.

How is Trent doing today? It seems like there are a lot of ups and downs when he is ill and I am sorry he has to get ill. He must be one really special spirit

I have also had SO many comments on facebook, I will post them at another time!!